Our Sunshine Sophie.

30th June 20010

Sophies been going though a bit of a rough time recently. She has suffered from a lot of falls which have left her with a lot of aches and pains, her powerchair has broken and she had a very near miss because of it. And to top it off she is now having breathing difficulties which we are waiting for her specialist to investigate.

Sophies grown out of her back brace now and will be reciving her new one next week. Shes doing so well managing to wear it for 10 hours a day. Although she is finding it difficult with this hot weather.

18th April2010

http://www.oursunshinesophie.com/

We felt this name said it all about our beautiful princess. You will still be able to find us with the old name so dont worry.

Sophie know wheres a back brace for 10 hours everyday as her spine has curved to 47 degress. We are praying that the backbrace will slow down the curving as the next option will be surgery. This is something major we wish to put on hold for as long as possible.

We have two new events planned. We are holding a raffle for a PartyLite Hamper on the 22nd May. Please see are event page for more details on how to get your raffle tickets.

Also Sophies grandad Colin is running the Great North Run in September. Money rasied will be split between Sophies fund and Rainbows Childrens Hospice. We really need you hel, if you can sponsor Colin please get in touch. Together we can make a difference for Sophie and all the hundreds of sick children at Rainbows Hospice.

11th August 2009.

Sophie has now finished year 3 and enjoying her summer holidays. She came home at the end of term with a fantastic school report. With all she goes through and has to deal with each day to be doing so well at school is fantastic, and we are extremely proud!
Sophie has been have problems with her eyes as her eye muscles are weakening she is struggling to focus. So she is now wearing glasses throughout the day, which she has taken to very well.
On the fundraising side of things we still have a list full of equipment that Sophie needs but unfortunately the NHS don't provide. Sophie is ready for some new special shoes to wear over her splints which cost £300.
She really needs you all now to show your support! You can help raise these much needed funds by registering and doing your Internet shopping through easyfundraising.
easyfundraising is a shopping directory that features some of your favourite online stores, including Amazon, NEXT, Debenhams, John Lewis, Toys’R’Us, HMV and over 500 others. All you have to do is use the links on the easyfundraising site whenever you shop online and, at no extra cost to you, we'll receive a free donation of up to 15% from every purchase you make. It really is that simple!
It’s completely FREE to register and use and you still shop with each retailer in exactly the same way. Many retailers even offer additional discounts and money saving e-Vouchers when you shop using easyfundraising.
If you shop online anyway, then why not raise valuable extra funds for us by using this fantastic scheme. All you need to do is visit the www.easyfundraising.org.uk/sophiegodbertrust and when you register as a user, select sophie godber trust as the organisation you wish to support. Your next Tesco order or pair of irresistible shoes will have a little something extra with it - a donation to Sophie`s Trust.
So far we only have 35 members registured and there are over 80 member on this site and over 2000 on Sophies facebook group so please register and help Sophie in this easy way.
Once again Thank You for you ongoing support you show. Sophie is now getting old enough to understand about her site and your messages of support mean so much to her. It makes her feel " special"
So thank you xxxx

25th May 2009.

We are back from Great Ormond Street Hospital. Sophie had a very tiring couple of days, with many test. We are hopeful that we will receive some help in pain relief for Sophie’s back. We are waiting for a x-ray at QMC Nottingham to make sure there are no small fractures and the Doctors are looking into a special back support for Sophie to wear (which Im sure she will love!)
The physiotherapist showed us some exercise to do which we hope will be useful too.
I just want to say a very big thank you for all the kind messages of support and prays that were sent to Sophie over are trip away. It meant so much to Sophie and the rest of the family.

The RAF have very kindly donated a Complimentary ticket to the Royal Air Force Waddington International Air Show to help Raise much needed funds for Life limited Sophie Godber.

The Ticket is Valid for entry on: Sunday 5th July 2009.

It Permits Free entry for a vehicle & up to 5 persons.

Gates open at 0800 and will be closing at 1930

All money raised from this sale will go to Sophie's Fun

Wednesday 08th April 2009

As you all know we are looking at supplying Sophie with a Home Seating System that is a specialist chair that ensures uncompromising posture and ultimate comfort. We have now had the Chair Rep out from JCM. Sophie absolutely loved the chair and looked so comfortable in it. We have found out we will need to raise £2700 to supply Sophie with this chair. To help raise some of the funds we are holding a Medium night with 5 Mediums attending. This event will be held on the 14Th May At The Crown and Mitre Pub Newark Nottinghamshire NG24 1BE. 7.30PM – 9.30PM
This is a Tickets only event and all funds raised will go to supplying Sophie with the Specialist Chair.
Tickets are £10 each please contact me if you would like to bye a ticket or if you would like any other information on this event.

Also Cheryl Colson, Ben Irons, David Waller and Anthony Middleton will be jumping on there bikes to help raise funds for Sophie .Plans are To Cycle from Lincoln to Skegness. This is over 41 miles!
The starting line will be Lincoln Cathedral and the finish will be Skegness pier. This adventure will take place
Saturday 16Th May. Starting line 9.00am at Lincoln Cathedral.
We really need more sponsors every penny counts and will get Sophie nearer to her comfy chair.
You can send sponsors through by cheque made payable to “ Sophie Godber”  please post to
11, Thorpe Avenue, Lincoln, LN1 3UU
Or via PayPal, please send payments to ainsley_s_a@yahoo.co.uk please click on PERSONAL and then GIFT. This way we will not lose any of your sponsorship on PayPal fees.

We would like to say a big thank you to Sally Edwick from Lucy Locket who very kindle donated fairy bedroom decoration for Sophie’s bedroom. As you know Sophie has a ceiling track hoist and a specialist hospital bed in her room and things were starting to look abit clinically but with Lucy Lockets help Sophie’s room now looks beautiful with pink and purple bunting and fluffy fairies hangs all round. You really put a smile on Sophie’s face thank you so much. www.lucylocket.co.uk

Tuesday 24th Febuary 2009

I would firstly like to thank you for you continued support you show for Sophie. Please invite all friends and family to join us in our quest to give Sophie the life she deserves.
We will be receiving our statement from easyfundraising shortly for the period of 1st October to 31st December 2008. I'm pleased to inform you that by shopping on-line you have helped raise £51.40 for Sophie's fund. Which is fantastic!

For those who don't know about easyfundrasisng it is a shopping directory listing some of your favourite on-line stores including Argos, Next, Debenhams, John Lewis, Toys R Us, HMV and over 600 others. Just use the links on the easyfundraising site whenever you shop on-line and, at no extra cost to you, Sophie will receive a free donation of up to 15% from every purchase you make. It really is that simple!
It’s completely FREE to register and you won’t pay a penny more for your shopping when you use the easyfundraising site. In fact you can even SAVE MONEY as many retailers offer discounts, special offers and even 'e-vouchers' exclusive to easyfundraising.

If you shop on-line anyway then why not raise valuable extra funds for us by using this fantastic scheme. All you need to do is visit http://www.easyfundraising.org.uk/sophiegodbertrust and when you register, select Sophie Godber Trust as the organisation you wish to support. At the present our members list stands at 28 members. Please join us and help Sophie as you shop.

A big thank you goes out to every body of Coningsby's Baptist Church who have kindly donated £50 to Sophie's fund! There are a few of Sophie's supporters who are hoping to raise funds for Sophie through sponsoreded swim and bike ride. I will let you know more details soon.

Sophie is doing ok and has managed to stay healthy through the cold months(touch wood). Sadly she is really struggling emotionally, and we are trying to support her through this hard time. She feels not "normal" because of her disablitiy and seems very down. We are hoping she will soon receive one to one therapy to try help her come to terms with her deverstating condition if that is at all possible.

As her spine is curved from her scoliosis we are struggling to find comfortable clothes for Sophie, when at 8 years old all she wants to be is in the lattest fashion wear . So we now need to have clothes altered or speciailst clothes bought for her. She has been suffering with a lot of pains in her back and cramps in her legs. Unfortunatly she can not take any stronger pain killers as these contain muscle relaxents which can be dangerous to her heart and lungs. We are looking at supplying Sophie with a Home seating system that is a specaiast chair that ensures uncompromising posture and ultimate comfort. This will be our next fundraising adventure and hope you will help to support us along the way.

Friday 16th January 2009.

Saturday 20th December 2008.

This is most likely the last post of 2008. As some of you may know it is Sophie's 8th Birthday on Christmas Eve so I will update the gallery with birthday pictures in the New Year. I would just like to take this moment to say a big thankyou from the hole family for all the support you have given to Sophie this year. It means so much to us and we have made some new friends along the way.  We would like to wish you all a Very Merry Christmas and a very Happy New Year!  

Thursday 18th December 2008.

Today was Sophie's Nativity play! It was wonderful to go and watch. All the children worked so hard. There is some pictures in the gallery of " The Christmas Star Play". On the 8th Decenber Sophie had a  hospital appointment at Nottingham QMC. Sophie had a lung function test and xray of her spine. We are very happy to be told that Sophies Scoliosis is still at 23 degrees which means in the last year there has been no change, which is a great relief. We then had a chat with physio and family care support from the muscular dystrophy campain.
Sophie became very down and started to say how she gets so angry about having CMD and "she never gets what she dreams off". The physio asked her what her dreams were and she said she wanted to ice skate, jump, surf, skateboard and dance. She told them that as she couldn't do this she was not a "Real Girl". She got worryed about the future and that she will stop walking and need to use her chair all of the time. The dr's are going to make a appointment for her to talk to a special nurse who helps talk to children about Life Limiting Conditions.
I know she is finding things hard and I cant make it ok for her. I wish she could have all she dreams off too. And I wish she could see the wonderful person she is and all the amazing things she has acheived.

Friday 7th November 2008.

Sophie's powerchair is fixed and back with us. But Sophie no longer fits in it! She needs to have a specialist seating system in the sit as it will support her and help to keep her spine as stright as possible. So we now have to wait for all the extra work to be done before her chair is safe and useable.

Halloween 2008.

Sophie loves halloween, but unfortunatly the past couple of years were getting harder to take her trick and treating as her wheelchair didnt go down every ones paths. So this year we decided to have a family halloween party at home. We spent most of the half term holidays decorating the house with spiders webs and deciding on our costumes.

 Sophie decided she wanted to come to the party as  Bat Girl. I was a Devil and Michael was a Dead Pirate. Grandparents and Auntie Penny and Uncle Darren came to so it was a full house. Evan wasnt to pleased about it at first but then he got in to his tiger costume and joined in.

We all had a fantastic evening with lots of dancing and a couple of games of halloween bingo!

There wasnt many trick and treaters coming to the door so Sophie was happy to finish off the sweets! There are more pictures of our Halloween Party in the gallery.

Happy Halloween Everyone

Friday 3rd October 2008.

Sophie's a little fed up at the moment as part of her powerchair has snapped off! It is now out of order until a new frame is available, which could be a while . She has been using her push wheelchair and has to have some one push her around  where ever she wants to go. Its amazing how much independence the power chair gave her. Just the choice to go where she wanted with out having to ask and wait for some one. Fingers crossed it wont be to long till the new part is ready.

On a very exciting note a new website has been launched called " CureCMD". Here is a little bit about the site "Cure CMD’s mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies. Cure CMD will achieve this mission by working globally together with dedicated parent, government and research advocates. By focusing on this mission, Cure CMD will find and fund high potential research and clinical trials. Success will be determined by clinical applications that improve the lives of those afflicted with CMD’s" This is hope that one day there may be a cure. I just pray it is in time for Sophie. Please take a look at the site. You will be able to find a little of Sophie's story on the site too. www.curecmd.org

Thursday 25th September 2008.

Sophie's Sunshine celebration Fundraising Event.

Wow what a night! We arrived at The Lion and Snake Pub at 6pm to set up all the auction Items we had. And there was a lot! Didn't realise how many, until they were all laid out. One of the highlights of the night was meeting two of Sophie's newest supporters Ro and Sarah, who very kindley brought with them a Lincoln City Signed Football! Many thanks to Lincoln City for their kind donation. The Auction started around 8 o'clock which was a little slow at first, but soon started to flow very nicely. It was a great laugh and people were even out bidding themselves! After the auction we all needed a quick drink to calm ourselves, as the fight started for the raffle tickets! Once the raffle was drawn we wanted to make an anouncement of the toatal raised for Sophie. Which was when we all received a very large shock on hearing we had a total of just over £900, which was amazing. Then a very kind gentle man came over and made a donation to make the total up to £1000! We would like to say a massive thankyou to every one who made a donation, placed a bid,bought a raffle ticket and who came to support our Fundraising Event. Sophie can now have some special lighter shoes when she gets her new splints. Her head is in a whirl of colours, as she has never had a choice of colours to pick from before. Thank you

As you all know last March we raised money with the help of the Lincolnshire Echo to take Sophie on her Dream Trip to Disney World Florida. The trip was fantastic and it brought out a wonderful side of Sophie that we dont get to see enough of. Whilst we were there Sophie seemed very confident about being in her wheelchair. She didnt mind having to use it and never noticed any stares as she was so busy racing to get to the next princess. She was very positive about the plans of the day and there wasn't one "what if" or worrys from her. It was just fantastic and something that gave myself and Mike such pleasure to watch. So we have decided with the money left over from to nights event we are going to take her again. This time at Christmas so it will be very special Im sure. She always wanted to go back again and there are concerns that when Sophie starts having problems with her heart and respiratory muscles she will not be able to fly. So while we can we will. Im sure you will agree that it will be a real life enhancing activity for her and lots of wonderful family memories for us all. Myself and Mike will be doing lots of Car Boot sales over the next year to raise the extra funds needed for the trip to go ahead christmas 2009.

Tuesday 23rd September 2008.

This afternoon Sophie had cast's made of her legs and feet so that she could have new Splints made. Sophie first had this done when she was 6 months old and it has taken may visits for her to get use to it. Her feet drop down and she cant hold them at a 90 degree angle with out the help of her splints but forcing her feet into the angle while her cast are setting is a bit painful and not very comfortable for her. Today she managed very well. She sat well while the cast were made and now they will be sent off to make her new splints. She has chosen to have butterfly pictures on her splints and hopefully after the event on Thursday we will have raised enough money to buy some special shoes to fit which ( Fingers Crossed) will be lighter then the NHS Shoes and easy for Sophie to walk in. The NHS Boots are so heavy for Sophie that it makes it so hard for her to walk and we dont wont it to be the shoes that take Sophie of her feet, so we are on a misson to find the lightest specialist shoes we can.

Saturday 20th Setember 2008.

We have all walked what feels the hole of Lincoln today putting up poster for Sophie's Sunshine Celebration Event which is on this Thursday. It was very shocking to see how many shops Sophie could not enter because they didnt have wheelchair acess. But we manged to get most of them up and some how we also managed to get lost which Sophie found exciting!  But sadly when we got home Sophie had a fall in the kitchen. She was just stood talking and all of a sudden her legs just collapsed from under her. When she feel she caught her side on a cabinet haddle and has riped of the skin all down the right side of her body. She seemed ok but in shock. Think she will have a nasty bruise there. My heart aches so much for her.

Friday 12th September 2008.

Today Mike and I went to LincsFm for an iterview about Sophie's Sunshine Celebration Event. It was good fun and managed to get lots of information out about Sophie, her condition and the Event. It will be played Monday on the hour, every hour until lunch if you wanted to catch it. We now have the posters and are going to be spending the weekend racing around Lincoln to see who can put the most up .

Monday 08th September 2008.

Sophie is now back into school and enjoying her new class and new friends, but not to keen on the early morning starts. We recently recived a letter from Sophie's Neurologist with information about her recent Lung Function Test. Sophie now needs to use Salbutamol Inhaler spray daily. She is being really good about it and we are very proud. She is having a lot of aches at the moment especially her back which seem's to be more curved now then before the Summer holidays. We are hoping to see her physio this week for some advice.

Sophie's Sunshine Celebration is creeping upon us and we are getting very excited. We have meetings with the Lion and Snake pub to make sure things are coming together and we will be having talks with the Lincolnshire Echo news paper and Lincs Fm to advertise the night. We hope you can all come and join our quest to celebrate beautiful Sophie and raise some funds.  If there is anyone out there who can not make the night but would like to make a bid for a item please contact us to let us know, there is a full list of auction items on the Current Projects Page.

Summer Holidays 2008.

Thats it, the summer holidays are just about over! Its been a fast one. We didn't get to do all that we had planned as we are still having a lot of work done in the bathroom as the bath isn't working at it should. Theres a suprise for you all!

We celebrated Evans 2nd Birthday and had close friends to stay over. All holiday Sophie has been wanting to see the Disney WallE movie. Which we did manage to do and she loved it that much that Dad has now turned her chair into WallE. Which for now she seem's a little happier to be in. Sophie has had a few falls this holiday luckly none being too serious, but is now relying more on lifting by hoist which she seem's to be coming to terms with ok, all though she has commeted that she wished she was "a real girl". No matter what it hurts. But we are looking forward to the new school year, she is a little worried about moving into a new class but I'm sure she will do just fine. We will let you know how she gets on.  New pictures have been added to the gallery of Sophie's Summer holidays.

Friday1st August 2008.

Today we travelled to Loughborough to meet up with our MDLink group for a Barge Trip. Peter Le Marchant Trust provide day outings for disabled or seriously ill people. The boat "Symphony" is designed and equipped to take wheelchairs with a Hydraulic lift for easy access to the foredeck. It was a nice day and the weather was sunny with only the occasional shower. Sophie went up on the foredeck and experienced going through a lock, how it worked and noticed how it smelt more the lower we were. Also going through very low bridges, which she didnt mind at first until she noticed all the spiders webs.

Friday 25th July 2008.

This weekend we went to stay at Rainbows Children's Hospice. We had a lovely time away, just the break we needed. Sophie managed to catch up with her friend Declan as he stayed for a night at the weekend. Sophie did lots of fun things, she started the morning with breakfast in bed whilst watching Winnie the Pooh. Very spoilt. The Loughborough Gospel choir came to visit and sing some fab songs which Sophie really enjoyed and clapped along. She also managed to go in the paddling pool as it was so warm which was a lot of fun and cooled her down for a while. Sophie did every ones make up and had a butterfly face painted on. It's always sad to leave but hopefully it wont be long before we are back.

Tuesday 22nd July 2008.

 Today was Sophie's Sports day at school. It was a great day and all pupils tried so hard in their races to help earn house points for their houses. Sophie had two wheelchair races and she came second in both! Which meant 4 points for Discovery house. Well done Sophie your a star  .   More pictures of Sports day are in the gallery.

It was also the school Art Exhibition, where pupils Art work was framed to have a look at and to buy your own child's picture. Sophie painted a beautiful Peacock, which we thought looked great. I now need to try and make room on the wall for another picture!

 Monday21st July 2008.

Today was sand and water day at St Francis School for the primary department. Luckily the weather was good for it too. Sandpits and paddling pools were out, with buckets and spades and water toys to use. Gazebos were put up for rest time and a picnic lunch. There were also donkeys to ride on which everybody loved very much. The children enjoyed feeding them carrots. Sophie had two rides, one on Josh and the other on Rosie. Evan sat on one but didnt fanncy a ride.

It was a lovely day, and fun was had by all. There are more pictures of Sophie having her donkey rides in the gallery. Tommorow is Sports day and Sophie has been practising lots and is a whizz in her power chair. So keep a look out for tomorrow's results.

Friday 18th July 2008.

Today we visited The Lion and Snake Pub in Lincoln to ask about using their venue for an auction night, they were very pleased to hold an event for Sophie. We have the event booked in for the 25th September 2008. We are so excited that we could bring this event forward to this year. We have recived many action items. You can find the full list on the "current projects" page.

Tuesday15th July2008.

Today we received our Isis Height Adjustable Bath. Hopefully when all the bathroom adaptations are finished, bathing will be a lot easier and fun. We are still waiting for a Ceiling Tracked hoist to lower Sophie into and up out of the bath. So for now myself and Mike have to be very careful lifting her in and out. As lifting her under her arms causes shoulder dislocation, which isn't good. The work started very slowly in November 2007, so we will be very pleased when all is completed. As the bath is needed to help Sophie by soothing muscle cramps and spasms. We want to make the bathroom relaxing and Sophie has decided that she would like to have a mermaid bathroom. So when all work is complete the mission has been handed to Daddy the Artist of the family. We will let you know how this goes.

Sunday 13th July 2008.

Saturday night Sophie and Evan went to stay with Nana Sue and Grandad Les, whilst myself and Mike got ready for our boot sale. It was a very early start and a bit of a struggle to leave our warm bed but we did it and was setting up our stall at Hemswell Market by 6.30am. As soon as the van opened people were already looking for a bargain.  The weather stayed dry and very warm and we both have little burnt noses! We are really pleased with how the day went and we really enjoyed it. We feel we raised a little awareness of Sophie and we managed to raise £133.85 for Sophies fund.  Fantastic! A HUGE thank you to everybody who bought and donated to our stall!

Thankyou so much to everyone who donated items for us to sale and a big Thankyou to Hemswell Market for giving us a free pitch for the day. We are hoping to do a boot sale again so if anyone one would like to send in unwanted items to sell we would really appreciate it. Please feel free to get in touch by using the " contact us" page or emailing ainsley_s_a@yahoo.co.uk  more pictures of the boot sale are in the gallery.

   Wednesday 9th July 2008.

Today Sophie's school ( St Francis Special Community School) open the new primary playground, that they have worked so hard to raise funds for. The rain just held of long enough for Sophie to show us around. Every body was really pleased with the accessible for all playground and even Evan had a play. Sophie can use the activity park in her wheelchair. The floor is different textures so some of the ride was a little bumpy.  The ramp back down to the grass meant she could pick up some speed which she loved a lot. There was also a bed swing that she and friends can just be laid on and and rocked. I'm sure that will be popular on  Sunny days.

There are some new pictures in the gallery of today's event.

Friday 27th June 2008.

We would like to say a very big thank you to RAF Waddington and Our Lady Of Lincoln School for supporting Sophie and buying her wrist bands.

Wednesday 25th June 2008.

Sophie is really impressed with her new Wrist Band. And everyone seems to like the colour. Thankyou to Grandad Les and Nana Sue for you help in selling the first few and thank you to all of Sophie's Supporters who have bought one already.  

We also have some printed leaflets about Sophie and our quest to make her life as good as she deserves. If any one would like a few for work staff rooms, bars or shops, etc drop us a line and we will post some on.

 Wednesday 11th June 2008.

Sorry things have been a little quite. Things have been a little hard for Sophie recently with finding movement much hard. She went to QMC Nottingham Hospital today and was very brave for a full days worth of tests. Everything went ok and she has to do a oxygen sleep study to night. Keep fighting it Sophie we love you.                                                                                    Also we have a rubber wristband for Sophies Trust that will be available soon. Wearing it will show your support for Sophie.   Watch This Space.   

Wednesday 21st May 2008.

Sophie has been very tired recently and found moving extremely hard. Sophie came home from school yesterday and was struggling to walk. She is having today of to recover. Next week is half term so fingers crossed Sophie will be able to rest and get some strength back.

Sunday 20th April 2008.

We all went ice skating with our MD Link group from rainbows. Only Sophie and Mike braved the ice as I Stood safely on the side laughing... Sorry I mean taking pictures. Sophie enjoyed being on the ice in the sledge more than her wheelchair, but it didn't do much for mikes back. I'm very proud to say Michael managed to stay up on his feet although others didn't. After a 45 minute skating session we went to the cafe for a drink and catch up will Sophie played hide and seek with her new friend Declan.      

What a fab day!

Monday 7th April 2008.

To hold back the after holiday blues a little treat came for Sophie in the form of a puppy, named Deedee. We thought she would make a great companion for Sophie and we are hoping to train her to do some tasks to help Sophie.

Sunday 30th March 2008.

Today Sophies grandad Colin, Auntie Nick and friend of the family Howard ran the Lincoln 10k race, to raise money for Sophie for equipment she requires. They all did very well and we are very proud and extremely grate full. Hope the Muscles soon stop aching.

Tuesday 11th March - 25th March 2008.

Thanks to every ones efforts Sophie got her wish and had a 2 week holiday in Disney world Florida. We had a amazing time! Sophie meet Ariel the little mermaid more than once, and had a make over and turned in to a Mermaid herself. She got to meet all princesses and saw a Beauty and the Beast Show. She loved every minute of the trip, we all did and we have a lot of memorise to keep for ever. There are just a few of our pictures in the gallery.

Wednesday 5th March 2008.

Sophie got the all clear from the Fracture Clinic today.  Fingers crossed no more falls.

Friday 22nd February-Monday 25th February 2008.

Sophie had a visit to Rainbows children's Hospice. She had her best mate Tina ( nickname Tee-tee) looking after her. Tina was Sophies one to one care and support throughout her stay which meant myself and Michael got a rest. Sophie had a fab time making things for mothers day and playing on the Nintendo wii. Sophie was a little sad about her broken arm stopping her from being able to walk around but we didn't wont any more falls before are trip to Disney World. Sophie and Mike went into the Jacuzzi for water therapy. Sophie loved it and wanted to stay in all day. She used a special chair hoist to help her in and out. She also sneaked in a water pistol and managed to get everyone in the room as wet as she was! There are more pictures in the Gallery.

Monday 18th February 2008.

Sophie had a fall this evening and Broke her left elbow. She`s very upset as it is hurting lots and it is hard to move her with out it causing her pain. She can not have her arm in a cast because of the type of brake. She should be wearing a sling, but she hasn't got enough muscle strength in her neck to hold her head up with the sling. So at the moment she is sat with a pillow on her lap supporting her "poorly" arm.

Saturday 2nd February 2008.

Disney World Florida is booked!11th March 08. I would like to thank everyone who helped with fundraising, its because of all you guys that Sophie's wish is coming true. Thankyou. Sophie can not believe it really is going to happen and is she's really excited.

 Monday 28th January 2008.

Just wanted to let every one know Sophie is up and walking again. It is still sore and she cant walk with out her splints and boots. But it is so good to have her walking in front of the telly again

 Tuesday 22nd January 2008.

Today we went to visit the Red Arrows at RAF Scampton. They very kindly made a

Monday 21st January 2008.

I am pleased to say Sophie is back at school. Sophie is still not walking as yet, but Physio at school are keeping a close eye on her. Fingers crossed her mobility will be back soon.

 Monday 14th January 2008.

After school Sophie had a bad fall and hurt her right ankle. The Dr's at the hospital don't seem to think that she has broken anything but she is still in a lot of pain and her ankle is swollen. She is not wait bearing and stuck on the sofa until it gets better. She would like to ask for extra messages in her guest book please to cheer her up. Thankyou.donation towards Sophie`s dream trip to Disney world Florida. We had a great time watching the planes getting ready to take off and waving to each pilot. We had a tour around a hanger and a close look at a Red Arrow and most importantly where the smoke comes from. Then we went out for a picture with everyone. There are more pictures in the Gallery

Thursday 10th January 2008.

Sophie had a Ceiling Track Hoist fitted in to her bedroom. To help with moving her around her room and to pick her up when she falls. She wasn't to happy about it to start with, and was a little frightened of it , but by the time it was bed time Sophie had a good play with it and didn't wont to go to bed! See the pictures in the gallery.