Sophie Godber Trust Fund

Sophie is our wonderful daughter who has an extremely rare genetic condition called " Congenital Muscular dystrophy Merison Deficient." (CMD). This is a life limiting, muscle wasting condition. It means she has a low muscle tone, which makes  her very floppy and she has to spend most of her time in a wheelchair.

She will lose her ability to walk as she grows older and heavier, as her muscles are unable to cope with a greater strain. Sophie has already had serious falls resulting in broken bones due to this weakness.

This condition also affects her respiratory muscles and in the future she may need to rely on oxygen ventilator for support It can also effect her heart, as it will find it harder to beat as the muscles weaken.

Sophie also suffers from Scoliosis which is a unnatural curve in the spine. In CMD Scoliosis develops because the weakened spinal muscles are unable to support the spinal column. Because of this Sophie is facing Major Spinal Surgery.

At present there are no cures or treatments.The doctors don't know how long we will have our beautiful daughter in our lives.

Because of this we want to give the very best to Sophie and make sure every day counts. We have set up a personal Fund for Sophie. Our aim is to raise funds to pay for life enhancing equipment and activities.

Sophie is a very special girl who has an infectious energy. We are so proud of her and love her deeply.

Please become a member of Sophie's site and show your support.

Thankyou.

Sophie see's you are visiter

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