Meet Sophie
At two years old our beautiful Daughter Sophie was diagnosed with a disabling muscular wasting condition called
"Congenital Muscular Dystrophy,Merosin-Negative " it is a progressive and life limiting condition which has no treatment or cure.
Obviously we were and still are heartbroken at the thought of all the pain and upset Sophie has to face each day. As parents we want to do anything and everything that we can to make our precious Sophie's life as long and happy as possible.
Sophie finds things very difficult but she tries so very hard to find her own way. Even with her condition Sophie is a very bubbly little girl who is extremely chatty. She loves to act out princess stories and longs to be Ariel the little mermaid. Sophie enjoys nothing more than zooming round in her wheelchair casting webs while playing spider man with daddy!
Through this website we wish to raise awareness of Sophie's condition and raise money to buy specialist equipment to help with Sophie's care needs.
Thank you so much for taking the time to visit Sophie's site.
We hope to see you again soon.
